Memorial website in the memory of your loved one
This memorial website was created in the memory of our loved one, Mia Zuvic who was born in Texas on January 19, 1991 and passed away on August 05, 2006 at the age of 15. We will remember her forever.

Keep checking back as I update this site.....Thanks for visiting.

She's got a smile that it seems to me
Reminds me of childhood memories
Where everything
Was as fresh as the bright blue sky
Now and then when I see her face
She takes me away to that special place
And if I'd stare too long
I'd probably break down and cry

Sweet child o' mine
Sweet love of mine

She's got eyes of the bluest skies
As if they thought of rain
I hate to look into those eyes
And see an ounce of pain
Her hair reminds me of a warm safe place
Where as a child I'd hide
And pray for the thunder
And the rain
To quietly pass me by

Sweet child o' mine
Sweet love of mine

Where do we go

Mia was diagnosed with a rare bone marrow disease called Myelodysplastic Syndrome.  There was no cure and we were told the disease would likely progress to a very agressive and fatal form of Leukemia.  For 2 1/2 years we waited to decide....and then with blood transfusions becoming a part of her life every 2 weeks, feeling aweful and the bone marrow pathology becoming more diseased....the decision to have a transplant was made.

She had no bone marrow matches in the registry.  Her only option was Umbilical Cord Stem Cells.  Since she was a big girl, they used 2 cords since this method had worked with adults.  Her first transplant failed and she had to endure another one a month later with 2 more cords.  These were not as good of a match as the first 2 and high resolution testing could not be completed due to the urgency of her having no functioning bone marrow for a whole month. 

During her treatments she had hundreds of units of red blood cells transfused into her.  Platelets too.  Not to mention, all the poisons.

The chemotherapy used in transplants is the most toxic kind possible.  They literally kill you and then attempt to rebirth you with the new stem cells. 

Mia battled so many complications it was not believable.  Almost every possible side effect and complication was encountered.  This included Graft Failure, Acute Graft Vs Host Disease,  IPS pneumonia,  Veno Occlusive Disease, RSV, Lymphoproliferative Disease and ultimately Chronic Graft Vs Host Disease.  This is where the new bone marrow attacks your organs.  Her new marrow was attacking her GI tract and causing her to lose weight and not absorb her food.   More immune suppressants were given to her to the point that she had no functioning immune system and an infection took her life. 

Her battle was terrible and she suffered many painful episodes.  She always stayed positive and never believed she would not make it.  
Tributes and Condolences
I'm thankful   / Anna Sophia Doyle (Cousin)
I’m thankful for a life full of wonders that never ceases to amaze me. The grace of God: the never-changing, everlasting presence that always guides my way and the comfort and solace I find in his arms in my times of greatest need. For what is more w...  Continue >>
Happy Valentine's Day   / Marilyn-mom Of Rachel Barnes
Thinking of you today and sending hugs your way.
Just stopping by...   / Britt Ross (friend)
I wanted to stop by, to say that I am thinking of you all and still do often. Thank you for all you have shared with the world...
Happy Easter   / Marilyn-mom Of Rachel Barnes
Let the resurrection joy lift us from loneliness and weakness and despair to strength and beauty and happiness. ~Floyd W. Tomkins
Thinking of all of you   / Brittany Ross (friend)
Mia, Kristy, I still think about both of you often. Mia, you left such a big imprint on my heart and my life. I'll always be grateful for that. Love always,Brittany
Our Kids  / Dale Ashcraft (Friend)    Read >>
Thinking of you  / Marilyn-mom Of Rachel Barnes (friend)    Read >>
A valentine for a sweet angel  / Rosemary Sis Of ^j^ Alvin Cremeans     Read >>
An angel  / Kathleen Wilbeck (Leukemia and Lymphoma bbs )    Read >>
for (((kristy))) on mia's birthday...  / Annie, Cait's Mum     Read >>
Happy Birthday Mia!  / Twilly (cosuin)    Read >>
Thinking of you on your special day  / Marilyn-Rachel's Mom     Read >>
HAPPY BIRTHDAY!!  / Brandy Mommy Of Julia Ann Corliss     Read >>
Princess Mia  / Sherrie Placencio     Read >>
Your Mia and my Jarrett  / Michelle Boston     Read >>
More tributes and condolences...
Click here to pay tribute or offer your condolences
Her legacy
Mia's legacy....  
She was my daughter.

Mia was feisty, determined, brave and joyful.  From the time she was born, she was strong.  Sleeping in her bed the first night and never being afraid.

These are a things Mia enjoyed tremendously:

Cats
Horses
Eating
Cooking
Fishing
Wakeboarding
Music
Comedy
Her brother Danny

She hated cancer.  She believed in justice.

Who knows what she would have grown up to become.  She was not the most studious, but she wanted to go to Baylor.  She wanted a job.  In fact one of the last things she said to me was she did not want to die because she wanted to own a car and have a job.  That was how she communicated.  Very descriptively and purposefully.  One time when she was about 3 years old, I scolded her and was walking out of her room when through her tears she said......"I need a hug".  She was only 3 !!!

Mia did a fare share of traveling.  She visited Manhattan, Boston, Los Angeles, Miami, Orlando, the Dominican Republic and Rio De Janeiro.  New York City and Los Angeles had a special place in her heart.  She loved the liveliness of the big city.  She was very brave and felt one day she would live in New York City.

I miss her so much.  As a mother to a child who is not alive, it is a very confusing feeling.  I have such a need to nurture her, but yet she is not here.  The pain is so great, that I don't allow myself to feel it most of the time.  Although I know it is there and I can conjure it up at certain times, most of the time I control it. 

Like most children with life threatening diseases.  Mia told me she was more concerned for me and how I would survive all of this.  I try and remember that she is still with me.  Without her physical presence, it is a constant exercise.

More later.
 
Mia's Photo Album
Fresh baby
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